You are More Than a Sum of Your Parts

Oye. What a week so far.  I started on a high note, and it sort of went downhill from there.  Add in getting sick, topped with preparations for our vacation on Sunday, and I am absolutely fried.  I had to go in to school for a little on Wednesday while running a fever because some […]

Preschool Bound!

If you have been reading my blog, you know I have been very frustrated with the preschool process.  It’s being going on for months now, and I have to admit I attacked it from the beginning like an angry mama bear.  I never gave the school a chance.  In my defense, I am programmed at […]

The Monster Has a Name

Today, it was confirmed that Harry has Emery-Dreifuss Muscular Dystrophy.  I can’t believe that this monster stealing his strength has a name.  It feels surreal and uncomfortable, but also final and reassuring.  Let me elaborate. Our first round of genetic testing was the myopathy panel.  Myopathies are the cousins of dystrophies, and they are different […]