On Sunday, my gym held a Punch-A-Thon for Harry’s Heroes, and I had such a great time! I have been a member at CKO Jackson for almost two years now, and have acquired a family from there. Many of you may remember that this gym came at a pivotal moment for me. I joined just […]
My team mate and friend Ali suggested we all sign up for this half marathon in the beginning of September. She said it would be fun and perfectly timed in our training. I signed up, and then all the way up to the marathon I cursed her, but it actually was a great time and […]
Friends, I am seriously overdue for a set of good runs. I can’t explain to you just how bad everything in that department has been going. First, it started with a large hematoma on my left shin, which is finally feeling a little better. Next, I broke my right pinky toe. Nothing major, just another […]
If you have been reading my blog, you know I have been very frustrated with the preschool process. It’s being going on for months now, and I have to admit I attacked it from the beginning like an angry mama bear. I never gave the school a chance. In my defense, I am programmed at […]
Marathon training is well underway. In fact, we are about halfway there. Many of us are really in the swing of things, with our long runs now over the half marathon (13 mile) length. Guys, it’s getting serious. We are mentally and physically breaking down, only to hope to be rebuilt. It. Is. Tough. Yesterday […]
I have so much to blog about. I’m sorry for abandoning you all, but it has just been nuts over here. All winter we are dying for something fun to do, then the warm weather hits and there’s something on the schedule every day! Between fun stuff, Harry’s therapy, marathon training, school, and studying for my […]
I love going to our appointments at CHOP. The doctors there are really wonderful, and when you visit they make it multidisciplinary, meaning you make one trip and see a slew of specialists. It’s already worthwhile to see our amazing doctor, Dr. Brandsema, but it makes it all the more worthwhile when we get to […]
Today, it was confirmed that Harry has Emery-Dreifuss Muscular Dystrophy. I can’t believe that this monster stealing his strength has a name. It feels surreal and uncomfortable, but also final and reassuring. Let me elaborate. Our first round of genetic testing was the myopathy panel. Myopathies are the cousins of dystrophies, and they are different […]
This weekend, Harry and I were able to shuffle up to PA to attend The Devon Horse Show and cheer on Harry’s Uncle Rusty as he showed his horse. This is a very prestigious show; Rusty and his amazing horse Azor were up against incredible competition – 36 other horses! In a crowd that big, […]
So our preschool evaluation went exactly the way I thought it would. I don’t even really want to get in to the details right now because I’m angry, but also because I am going to wait for the final evaluation and determination over the summer, and talk to people who can help us. I want […]
