Punch-A-Thon

On Sunday, my gym held a Punch-A-Thon for Harry’s Heroes, and I had such a great time!  I have been a member at CKO Jackson for almost two years now, and have acquired a family from there.  Many of you may remember that this gym came at a pivotal moment for me.  I joined just […]

Making Shamrocks Lucky Again

In between Valentine’s Day and St. Patrick’s, Lowes does this amazing event with the MDA.  They have cutouts of shamrocks at checkout, and for just $1 you can buy one, write your name on it, and it will go on their wall.  The money goes to the MDA to fight against neuromuscular diseases. Last year […]

Hope, Help, and Healing

Yesterday, Harry and I had our weekly visit with our amazing chiropractor, Dr. Tyler Richards.  We always have the nicest conversations, and I always feel physically and mentally better when I leave.  I would highly recommend him, especially for pediatric patients.  He’s got a great bedside manner.  We talked about a lot of things that […]

Big Wheels Keep on Turnin’

Are you singing Proud Mary yet? Yes? Good. Sometimes life smacks you in a way that makes you take a huge step back and say Whoa.  Little trickles of things can suddenly start an avalanche so quickly. When I first started my journey in muscle disease (because let’s face it, Harry has his journey but I […]

Surprising Success!

Bringing my son to places with other kids his age has long been a source of anxiety for me.  It was only recently that I braved bringing my son to the indoor play area in our local mall.  So when we were invited to a friend’s kid’s birthday party at My Gym (think Gymboree), I […]

What will you get loud about?

Everyone has their own universe they live in.  It’s their reality – what stares them in the face throughout their day.  You can’t compare your reality to someone else’s, and that can be a hard fact to hang on to.  I’ve had my struggles in life and each time I felt guilty about what was […]

The Holidays Stole Me!

I’m back! Whew – what a couple of weeks I’ve had.  Between finals, Christmas, family visiting, my head is spinning!  No complaining here though.  We had an amazing time with my sister visiting from NOLA, family in from Georgia, NYC, Cape Cod, Portugal, and Germany, it was amazing to see everyone.  Some family members haven’t […]