I Can Fly!

Running is a strange thing.  Sometimes, for no reason, it goes terribly.  Sure you can train and eat right and not wear new gear and warm up properly, then for no good reason you fail miserably (see my attempt at a marathon).  Other times, you expect a huge failure, and somehow you gain wings.  Every […]

Gettin’ Me Down

Oye.  I am feeling a bit trampled on and down in the dumps today.  Work is rough.  I’m just feeling a bit abused and my confidence is suffering.  I can get whiney from time to time and I feel like whining a bit now. It’s okay though – we are all allowed to feel down […]


  Life is sometimes a funny ride, and perspective is everything.  I am having a tough time with balancing work and life, and discovering a lot about myself and how I perceive things along this journey.  I often enjoy the challenge of making it all work, but I get frustrated when it seems to not […]

Putting Family First

Prioritizing is a challenging task, especially for us parents who often struggle to find the right balance between family, work, and personal life.  I am constantly reevaluating this balance, and trying to find the right one.  There’s no perfect equation, nothing simple that makes everything even and perfect, and the balance is always changing. One thing […]

Chasing the Inevitable?

One of the most touchy subjects in the life of someone with muscular dystrophy involves mobility.  People with muscular dystrophy don’t fit a mold.  Each one is unique, with their own set of strengths and weaknesses.  Not all fall under the categories of “walker” or “wheelchair”. Needs also change over time.  The path of muscular […]

Not Much for Talking

I haven’t felt much for talking lately.  No particular reason why, nothing terribly sad or awful, just feeling a bit quiet.  It’s been bubbling since hubby was in the hospital in March.  Life has been crazy busy, in a good way, and I’m trying to logically rearrange everything to accommodate my family and my time […]

Cleaning Up

I feel like for the past couple of months I have been in a change phase of life.  There have been many changes for me, and for once I’ve embraced it.  I think as humans we all innately fear change because it takes us out of our comfort zone.  Living with a child with muscular dystrophy makes […]

Forge the Warrior

The past three years after Harry’s diagnosis have been a whirlwind for me.  In some ways, I feel like a different person.  Looking back to the beginning feels like looking in to the dark ages, and I feel like I’ve been molded in to a warrior (see above picture) in the process.   Well, maybe […]

The Town

A good friend moved to Philly and we are so proud of her for taking big steps in her life.  Also, Harry and I are happy to have reasons to go to visit and explore Philly.  Every time we drive in, I say “Harry, we are going to the city – I mean, Philly!”  Harry […]

Mother’s Day Fun

Can’t stop, won’t stop!  That seems to be the motto lately.  Also “no rest for the weary” would be appropriate, but I am having a good time too.  A little update: hubby’s eyesight continues to improve, inch by inch (literally).  He is feeling pretty good, and we hope this progress will keep up. That was […]