Becoming a Runner

    I am a runner – as crazy as it sounds, this phrase still shocks me.  I never thought I could be a runner, or that I wanted to be a runner.  It seemed to out of reach, really because I had put it out of reach.  But here I am, a runner who […]

Parenting is Special

Parenting is tough, no matter what your situation, and I give all the parents out there some major credit.  This job is challenging, to say the least!  But to my homies, my special needs parents, I’ll give you a little something extra – you guys rock.  This is a crazy club to be a part […]

I Can Fly!

Running is a strange thing.  Sometimes, for no reason, it goes terribly.  Sure you can train and eat right and not wear new gear and warm up properly, then for no good reason you fail miserably (see my attempt at a marathon).  Other times, you expect a huge failure, and somehow you gain wings.  Every […]

Gettin’ Me Down

Oye.  I am feeling a bit trampled on and down in the dumps today.  Work is rough.  I’m just feeling a bit abused and my confidence is suffering.  I can get whiney from time to time and I feel like whining a bit now. It’s okay though – we are all allowed to feel down […]


  Life is sometimes a funny ride, and perspective is everything.  I am having a tough time with balancing work and life, and discovering a lot about myself and how I perceive things along this journey.  I often enjoy the challenge of making it all work, but I get frustrated when it seems to not […]

Putting Family First

Prioritizing is a challenging task, especially for us parents who often struggle to find the right balance between family, work, and personal life.  I am constantly reevaluating this balance, and trying to find the right one.  There’s no perfect equation, nothing simple that makes everything even and perfect, and the balance is always changing. One thing […]

Chasing the Inevitable?

One of the most touchy subjects in the life of someone with muscular dystrophy involves mobility.  People with muscular dystrophy don’t fit a mold.  Each one is unique, with their own set of strengths and weaknesses.  Not all fall under the categories of “walker” or “wheelchair”. Needs also change over time.  The path of muscular […]