Often I go off blogging because I don’t want to deal with the emotions I’m having.  This latest hiatus has been exactly that, though blogging would probably be helpful to deal with my feelings.  To address the issue: nothing is really wrong.  There hasn’t been a diagnosis yet, Harry isn’t doing worse (he’s actually making […]

So I’m sitting here finishing up the telethon, and I have a lot going on in my head.  This has been really hard to watch, but also, it has been encouraging and amazing.  There are many stories of kids with SMA, which is a disease that can instantly bring me to tears.  We don’t yet […]